Privacy Policy

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Last Updated: 10 March 2026

PROBr Privacy Policy

At PROBr, protecting user privacy and maintaining trust between research participants and research organizations is fundamental to our mission.

This Privacy Policy explains how PROBr collects, uses, stores, and protects information when individuals use the PROBr platform, including the mobile application, website, and related services.

By using PROBr, you agree to the practices described in this Policy.

1. Who We Are

PROBr is a digital platform designed to connect individuals with research opportunities and enable research organizations to recruit participants for ethically approved studies.

The platform allows:

• Individuals to discover and express interest in research studies

• Research organizations to publish study opportunities and review interested participants

• Researchers to connect and collaborate through a professional network

PROBr facilitates recruitment and discovery only.

PROBr does not conduct research studies, act as a clinical site, or collect medical records or clinical health data.

Any eligibility screening, medical information collection, or study participation occurs directly between the participant and the research organization conducting the study.

2. Information We Collect

We collect limited personal information necessary to operate the platform and facilitate study discovery and recruitment.

A. Participant Information

When individuals register as participants, we may collect:

• Full name

• Email address and login credentials

• General location (such as city or region)

• Race or ethnicity (optional)

• Study interests

• Records of studies the participant expresses interest in

This information is used to:

• Allow participants to browse and express interest in research studies

• Enable appropriate study matching and personalization within the platform

• Allow researchers to review interested participants in a de-identified format during early recruitment stages

De-identified recruitment stage

When a participant expresses interest in a study:

• The participant initially appears to researchers as a de-identified participant profile

• Researchers can see limited information such as general location or demographics

• The participant’s full identity is not revealed until the researcher approves the participant for further contact

This process helps protect participant privacy during early recruitment stages.

PROBr does not collect or store medical records, diagnoses, or health history from participants.

Eligibility screening and collection of medical information occur directly between participants and the research organization conducting the study, typically through external forms, institutional systems, or direct communication.

B. Researcher Information

When researchers or research organizations create accounts on PROBr, we may collect:

• Name

• Professional email address

• Organization affiliation

• General location

• Optional profile photo

• Documentation verifying the legitimacy of the research organization (such as proof of incorporation or institutional affiliation)

This information helps ensure that only legitimate research organizations can post studies on the platform.

Researchers may also:

• Post study advertisements for recruitment

• Share status updates on the researcher network feed

• Upload publications to share privately with other researchers via messaging

Publications cannot currently be posted publicly on the feed and can only be shared through private messaging.

C. Messaging Data

The PROBr platform includes an internal messaging feature designed to facilitate communication related to study participation and professional collaboration.

Messaging occurs in two primary contexts:

Participant communication

Researchers may communicate with participants regarding study recruitment.

To support responsible communication practices:

• Researchers send messages using preset communication templates provided by the platform

• These templates help ensure communication focuses on study logistics and recruitment coordination

Examples may include:

• Requests to complete eligibility screening forms hosted externally

• Requests for contact details to schedule screening

• Clinic visit scheduling or appointment coordination

• Providing study location or logistical instructions

Participants may respond to messages using free-text responses.

Participants are encouraged not to share sensitive medical information through the messaging system.

Any eligibility screening or medical information collection occurs outside the PROBr platform through the research organization’s systems.

Researcher collaboration

Researchers may also communicate with other researchers through private messaging.

Messages are stored within the platform in order to facilitate communication and maintain platform functionality.

PROBr does not analyze message content for advertising purposes and does not sell messaging data.

D. Automatically Collected Data

Like most digital platforms, we automatically collect limited technical information such as:

• Device type and operating system

• Browser type

• IP address

• App usage activity and performance metrics

This information helps us improve the platform and maintain security.

3. How We Use Information

We use collected information to:

• Enable participants to discover and express interest in research studies

• Allow researchers to review participant interest and initiate recruitment contact

• Personalize the platform experience based on location and interests

• Verify legitimate research organizations before allowing study postings

• Enable communication between participants and research teams regarding study logistics

• Allow researchers to connect and collaborate with each other

• Maintain platform functionality, security, and performance

PROBr does not sell personal information or use user data for advertising purposes.

4. Data Storage and Security

PROBr uses Amazon Web Services (AWS) to host and store platform data.

AWS provides enterprise-grade security infrastructure widely used by healthcare organizations, universities, and government agencies.

Security measures include:

• Encrypted data transmission using HTTPS and TLS protocols

• Secure cloud storage and access controls

• Restricted internal access to databases

• Continuous infrastructure monitoring and logging

These measures are designed to protect personal information against unauthorized access, loss, or misuse.

5. Data Sharing

PROBr only shares information in limited circumstances necessary for the platform to function.

Participant data

When a participant expresses interest in a study, limited profile information may be visible to the researcher reviewing interested participants in de-identified form.

Personal contact details become visible only after the researcher approves the participant for recruitment contact.

Researcher data

Researcher profile information may be visible to other researchers within the platform to facilitate professional networking.

PROBr does not sell, rent, or distribute personal data to third parties.

6. Research Recruitment Platform Notice

PROBr functions solely as a research recruitment and discovery platform designed to help individuals learn about and express interest in research opportunities.

PROBr does not conduct research studies, sponsor clinical trials, or act as a clinical research organization, healthcare provider, or research site.

The platform is used to facilitate initial communication between individuals interested in participating in research and organizations conducting studies.

Once a participant expresses interest in a study, any eligibility screening, informed consent procedures, clinical data collection, or research participation activities are conducted directly by the research organization responsible for the study.

PROBr does not collect, store, or process:

• medical records

• clinical screening data

• diagnostic information

• treatment information

• research data generated during study participation

Participants who choose to proceed with a study may be directed to external systems, websites, or communication channels operated by the research organization.

Those systems are governed by the privacy policies and regulatory requirements of the respective research organization.

Use of the PROBr platform to discover research opportunities does not constitute enrollment in any research study.

7. Data Retention

We retain personal data only for as long as necessary to provide platform services and maintain user accounts.

Participants and researchers may request deletion of their accounts at any time.

When an account is deleted, personal data will be removed unless retention is required for:

• security

• legal compliance

• fraud prevention

• platform integrity

8. Your Rights

Depending on your jurisdiction, you may have the right to:

• Request access to the personal data we hold about you

• Request correction of inaccurate information

• Request deletion of your data

• Object to or restrict certain processing activities

• Withdraw consent where applicable

Requests can be submitted by contacting:

info@probr.co

9. Cookies and Analytics

PROBr uses cookies and similar technologies to:

• Maintain secure login sessions

• Improve platform performance

• Understand how users interact with the platform

You may disable cookies through your browser settings, though some features may not function properly.

10. Updates to This Policy

We may update this Privacy Policy periodically as the platform evolves.

Updated versions will be posted on the PROBr website or within the application.

Continued use of the platform after updates constitutes acceptance of the revised Policy.

11. Contact Us

If you have questions about this Privacy Policy or your data rights, please contact:

PROBr COMP LTD

20 Swan Street, First Floor

Swan Buildings

Manchester

United Kingdom

M4 5JW

Email: info@probr.co

Website: www.probr.co